Resource Listing
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Public and Patient Engagement Evaluation Tool (PPEET)
An evaluation tool designed to assist health system organizations and others evaluate public and patient engagement efforts.
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Engage with Impact Toolkit
A toolkit developed to support health system organizations with the evaluation of patient, family and caregiver engagement, with a focus on impact.
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Creating Engagement Capable Environments in Ontario Health Teams
A framework for action highlighting key competencies, supports and enablers to support OHTs in their efforts to become engagement capable organizations.
Créer des environnements propices à l’engagement au sein des Équipes de Santé Ontario
Public and Patient Engagement Collaborative, June 2023
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Supporting equity-centred engagement
A step-by-step guide with tailored resources to help centre equity in your engagement work in health system and/or health policy contexts.
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Soutien à l’engagement axé sur l’équité: Guide détaillé avec ressources personnalisées
Public and Patient Engagement Collaborative & the Public Engagement in Health Policy Project, February 2023
POP-UP
Creating Engagement Capable Environments in Ontario Health Teams: A Framework for Action
PPEC Webinar, September 27, 2023
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Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey
Health Expectations, January 2024
Exploring meanings of expert and expertise in patient engagement activities: A qualitative analysis of a pan-Canadian survey
SSM - Qualitative Research in Health, Volume 4, December 2023
POP-UP
Partnering with Patients, Families and Caregivers for Integrated Care
ADVANCE, October 25, 2023
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Evaluating the impacts of patient engagement on a national health research network: results of a case study of the Chronic Pain Network
Research Involvement and Engagement, August 2023
Compensating Patient Partners in Research: Review of Current Guidance and Policies Across Canada
Public and Patient Engagement Collaborative, September 2023
POP-UP
Evaluating Your Engagement Activities
Institute for Better Health, Trillium Health Partners, OHT Learning Series, July 2023
POP-UP
Patient partnership in Canadian health systems: A snapshot in time
PPEC Spring Webinar Series, April 19, 2023
Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
Health Research Policy and Systems, January 25, 2023
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Understanding patient partnership in health systems: Lessons from the Canadian Patient Partner Survey
Webinar hosted by AbSPORU Patient Engagement Journal Club, November 2022
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Engaging the public in pandemic policy response: Missed and future opportunities for Canada
Public Engagement in Health Policy, blog post, August 15, 2022
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Designing and implementing deliberative process for Health Technology Assessment: A Good Practices Report of a Joint HTAi/ISPOR Task Force
International Journal of Health Technology Assessment in Health Care, June 2022
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Health Policy Series Kick-off!: A retrospective look at public engagement, with Julia Abelson
Matters of Engagement podcast, May 2022
Ontario Health Teams’ Experiences Developing Patient, Family and Caregiver Engagement and Partnership Strategies
Public and Patient Engagement Collaborative, McMaster University and Rapid Improvement Support and Exchange (RISE), OHT Patient Family Caregiver Engagement and Partnership Community of Practice
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Trends in Public Engagement in Canadian Health Policy from 2000-2021: Results from a Comparative Descriptive Analysis
Public Engagement in Health Policy, January 2022
Supporting High Quality Patient, Family and Caregiver Engagement: Principles and Practice
North American Conference on Integrated Care, October 2021
POP-UP
Engaging and partnering with older adults in the MIRA collaborative: Implementation and evaluation
MIRA Collaborative for Health and Aging Webinar, June 2021
Engaging and partnering with older adults in research: The why and the how
Summer Program in Aging, May 2021
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Metaphors of organizations in patient involvement programs: connections and contradictions
Journal of Health Organization and Management, April 2021
Patient, Family and Caregiver Engagement in Ontario Health Teams: Learning from Early Experiences
Public and Patient Engagement Collaborative, March 2021
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Developing a Canadian evaluation framework for patient and public engagement in research: study protocol
Research Involvement and Engagement, 2021
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An institutional ethnographic analysis of public and patient engagement activities at a national health technology assessment agency
International Journal of Technology Assessment in Health Care, February 2021
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Evaluating patient engagement: A conversation with Julia Abelson
Matters of Engagement Podcast, August 2020
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Priority measures for publicly reporting primary care performance: Results of public engagement through deliberative dialogues in 3 Canadian provinces
Health Expectations, October 2020
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The impact of COVID-19 on patient engagement in the health system: Results from a Pan-Canadian survey of patient, family and caregiver partners
Health Expectations, April 2020
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Partnering principles and strategies: A guidance document for researchers, older adults and caregivers
McMaster Collaborative for Health and Aging, updated March 2023
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Identifying approaches for synthesizing and summarizing information to support informed citizen deliberations in health policy: a scoping review
Journal of Health Services and Policy Research, 2020
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Supporting the evaluation of public and patient engagement in health system organizations: Results from an implementation research study
Health Expectations, October 2019
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Ethical challenges related to patient involvement in Health Technology Assessment
International Journal of Health Technology Assessment in Health Care, June 2019
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Evaluating Community Deliberations about Health Research Priorities
Health Expectations, August 2019
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Are we there yet? Reflections on patient engagement within the Canadian Health System
Webinar hosted by the BC SPOR SUPPORT Unit, March 2019
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Addressing the affordability of cancer drugs: using deliberative public engagement to inform health policy
Health Research Policy and Systems, 2019
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I just want to be able to make a choice: Results from citizen deliberations about mammography screening in Ontario, Canada.
Health Policy, December 2018
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Patient and public engagement in research & health systems decision making: A systematic review of evaluation tools
Health Expectations, December 2018
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Evaluating patient, family and public engagement in health services improvement and system redesign
Healthcare Quarterly, December 2018
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Uncertain times: A survey of Canadian women’s perspectives toward mammography screening
Preventive Medicine, July 2018
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Patient engagement in health technology assessment: what constitutes ‘meaningful’ and how might we get there
Journal of Health Services Research and Policy, 2018
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Questioning patient engagement: research scientists’ perceptions of the challenges of patient engagement in a cardiovascular research network
Patient Preference and Adherence, 2017
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Making Fair and Sustainable Decisions about Funding for Cancer Drugs in Canada
Final Report, 2017
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Uncomfortable trade-offs: Canadian policy makers’ perspectives on setting objectives for their health systems.
Health Policy, January 2017
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Public and patient involvement in health technology assessment: a framework for action
International Journal of Technology Assessment in Health Care, September 2016
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Enabling the participation of marginalized populations: case studies from a health service organization in Ontario, Canada.
Health Promotion International, August 2017
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Conceptualizing the use of public involvement in health policy decision-making
Social Science and Medicine, August 2015
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Patient engagement and Canada’s SPOR initiative: A resource guide for research teams and networks
Developed for the Ontario SPOR SUPPORT Unit, March 2015
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Public Engagement for Health Technology Assessment at Health Quality Ontario: Final report from the Ontario Health Technology Advisory Committee Public Engagement Subcommittee
OHTAC Public Engagement Subcommittee, April 2015
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Prof. Julia Abelson on PANORAMA’s promising start & public engagement trends
The Change Foundation's Panorama panel, September 2013
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Public Deliberation in Health Policy and Bioethics: Mapping an emerging, interdisciplinary field
Journal of Public Deliberation, 2013
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Consulting Ontario citizens to inform the evaluation of health technologies: The Citizens’ Reference Panel on Health Technologies
CIHR Citizen Engagement in Health Casebook
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Integrating public input into healthcare priority-setting decisions
Evidence & Policy, August 2011
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Eliciting ethical and social values in health technology assessment: A participatory approach
Social Science and Medicine, July 2011
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Development of a framework for effective community engagement in Ontario, Canada
Health Policy, June 2011
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Moving cautiously: public involvement and the health technology assessment community
International Journal of Technology Assessment in Health Care, January 2011
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Effective Strategies for Interactive Public Engagement in the Development of Healthcare Policies and Programs
A research synthesis commissioned by the Canadian Health Services Research Foundation and the New Brunswick Health Research Foundation, December 2010
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“It all depends”: Conceptualizing public involvement in the context of health technology assessment agencies
Social Science and Medicine, May 2010
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Obtaining public Input for health-systems decision making: Past Experiences and Future Prospects. Canadian Public Administration
Canadian Public Administration, March 2002
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Bringing ‘The Public’ into Health Technology Assessment and Coverage Policy Decisions: From Principles to Practice
Health Policy, June 2007
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Exploring the Role of Context in the Implementation of a Deliberative Public Participation Experiment: Results from a Canadian Comparative Study
Social Science and Medicine, May 2007
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Will it make a difference if I show up and share? Citizen perspectives on improving public involvement in health system decision making
Journal of Health Services Research and Policy, October 2004
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Does Deliberation Make a Difference? A Citizens’ Panel Study of Health Goals Priority Setting
Health Policy, October 2003
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Assessing the Impacts of Citizen Deliberations on the Health Technology Process
Cambridge University Press, July 2013
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Deliberations about deliberative methods: Issues in the Design and Evaluation of Public Consultation Processes
Social Science and Medicine, July 2003