As part of the PPE Collaborative's work with Ontario Health Teams through our role on the Ministry of Health's Central Program of Supports for OHTs, we are pleased to release our report "Patient, Family and Caregiver Engagement in Ontario Health Teams: Learning from Early Experiences". This report shares the findings of a series of interviews we conducted with patient, family and caregiver partners and engagement leads from a number of Phase 1 OHTs in late 2020. The focus of the work was on understanding how patient, family and caregiver parters are recruited to OHTs; structures and activities established to provide opportunities for them to contribute, advise, partner or co-lead; the influences of COVID-19 on engagement, partnering and co-design activities; early assessments of impact; contributors and challenges to successful engagement; and, recommendations for supporting engagement and partnering in OHTs moving forward.
Interested in engaging older adults as research partners but don’t know where to start? Check out this newly released guidance document on principles and strategies for engaging older adult patients, caregivers or community members in health research. This guide was developed for the MIRA Collaborative on Health & Aging but it offers useful guidance for anyone interested in learning more about the basics of high-quality engagement.
Check it out here.
Julia was a recent guest on Jennifer Johannesen and Emily Nicholas Angl's Matters of Engagement podcast where she discussed evaluating patient engagement and her experiences as a researcher of patient engagement who also partners with patients. You can listen to the podcast here.