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Principles and Practice

Much of the Public and Patient Engagement Collaborative’s work is focused on understanding how members of the public and patient, family and caregivers are engaged in health systems, health research and in broader policymaking. We aim to learn more about how individuals are engaged and who is being engaged.  

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Canadian Patient Partner Study

The Canadian Patient Partner Study (CPPS) aims to gain an in-depth understanding of the patient partner and advisor role as an emerging resource to the Canadian health system. This work includes a literature synthesis on patient partner and advisor roles, a survey of Canadian patient partners and in-depth interviews with patient partners and the organizations they join.

Young female and older adult female sitting together on laptop.

 

Public Engagement in Health Policy | A Future of Canada Project

The Public Engagement in Health Policy project aims to strengthen health policymaking in Canada by providing a platform for interdisciplinary scholarship, education and leadership in public engagement. Through the research, education and leadership opportunities provided, we seek to address current challenges such as how health policymakers can respond to calls for more inclusive and transformative public engagement processes and how public engagement can be used to improve policy responsiveness, enhance democratic legitimacy, and build trust between governments and citizens. 

Individuals sitting in a circle in a group discussion setting

Information Box Group

Related Resources

Additional Resources: Principles and Practice

PDF

Compensating Patient Partners in Research: Review of Current Guidance and Policies Across Canada

Public and Patient Engagement Collaborative, September 2023

WEBSITE

Partnering principles and strategies: A guidance document for researchers, older adults and caregivers

McMaster Collaborative for Health and Aging, updated March 2023

WEBSITE

Ethical challenges related to patient involvement in Health Technology Assessment

International Journal of Health Technology Assessment in Health Care, June 2019

POP-UP

Are we there yet? Reflections on patient engagement within the Canadian Health System

Webinar hosted by the BC SPOR SUPPORT Unit, March 2019