Cancer Drug Funding
In partnership with the McMaster Health Forum and the Canadian Centre for Applied Research in Cancer Control, we were awarded funding from the Canadian Partnership Against Cancer to engage Canadians in order to better inform decision-making about cancer drug funding. Six public deliberations were held across Canada in 2016–17 to develop recommendations to guide cancer drug funding decisions.
Information Box Group
Related Resources
WEBSITE
Addressing the affordability of cancer drugs: using deliberative public engagement to inform health policy
Health Research Policy and Systems, 2019
WEBSITE
Making Fair and Sustainable Decisions about Funding for Cancer Drugs in Canada
Final Report, 2017
Citizens’ Reference Panel on Health Technologies (CRPHT)
We formed the CRPHT to inform the work of the Ontario Health Technology Advisory Committee (OHTAC) at Health Quality Ontario (HQO). The CRPHT was formed to elicit public and citizens’ societal and ethical values that should guide OHTAC in developing its recommendations on specific topics. Five structured deliberations were held on a variety of topics relevant to the health technology assessments (HTAs) OHTAC had underway. The results of the deliberations were shared with OHTAC and usefully informed HTA decisions.
Information Box Group
Related Resources
WEBSITE
Consulting Ontario citizens to inform the evaluation of health technologies: The Citizens’ Reference Panel on Health Technologies
CIHR Citizen Engagement in Health Casebook
WEBSITE
Assessing the Impacts of Citizen Deliberations on the Health Technology Process
Cambridge University Press, July 2013
WEBSITE
Eliciting ethical and social values in health technology assessment: A participatory approach
Social Science and Medicine, July 2011
Mammography Screening
In recent years, emerging evidence on mammography screening has questioned the relative benefits and risks of screening average-risk women for breast cancer. This has led to an increased emphasis on informed decision-making as many screening guidelines acknowledge that there is no clear ‘right’ or ‘wrong’ decision about mammography screening and women need to make screening decisions based on their own values. Little attention, however, has been paid to women’s perspectives on mammography screening and informed decision-making. This project aimed to address that gap through a series of citizen deliberations and a population-level survey of screen-eligible women.
Information Box Group
Related Resources
WEBSITE
I just want to be able to make a choice: Results from citizen deliberations about mammography screening in Ontario, Canada.
Health Policy, December 2018
WEBSITE
Uncertain times: A survey of Canadian women’s perspectives toward mammography screening
Preventive Medicine, July 2018
Transformation Project
The purpose of the Transformation Project was to measure and improve the performance of primary care in Canada. We partnered with Dr. Sharon Johnston from the University of Ottawa to lead one of four studies within the pan-Canadian project. The project explored the best methods for reporting the results of primary health care performance to different groups of stakeholders: providers, patients and decision-makers. To achieve this, six deliberative dialogues were held across three provinces (Ontario, British Columbia and Nova Scotia).
Information Box Group
Related Resources
Additional Resources: Methods and Approaches
WEBSITE
Health Policy Series Kick-off!: A retrospective look at public engagement, with Julia Abelson
Matters of Engagement podcast, May 2022
WEBSITE
Patient engagement and Canada’s SPOR initiative: A resource guide for research teams and networks
Developed for the Ontario SPOR SUPPORT Unit, March 2015
WEBSITE
Consulting Ontario citizens to inform the evaluation of health technologies: The Citizens’ Reference Panel on Health Technologies
CIHR Citizen Engagement in Health Casebook