Canadian Patient Partner Study
The Canadian Patient Partner Study (CPPS) aims to gain an in-depth understanding of the patient partner and advisor role as an emerging resource to the Canadian health system. This work includes a literature synthesis on patient partner and advisor roles, a survey of Canadian patient partners and in-depth interviews with patient partners and the organizations they join.
Information Box Group
Related Resources
WEBSITE
Patient partner perspectives on compensation: Insights from the Canadian Patient Partner Survey
Health Expectations, January 2024
Exploring meanings of expert and expertise in patient engagement activities: A qualitative analysis of a pan-Canadian survey
SSM - Qualitative Research in Health, Volume 4, December 2023
Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis
Health Research Policy and Systems, January 25, 2023
WEBSITE
The impact of COVID-19 on patient engagement in the health system: Results from a Pan-Canadian survey of patient, family and caregiver partners
Health Expectations, January 2022
POP-UP
Patient partnership in Canadian health systems: A snapshot in time
PPEC Spring Webinar Series, April 19, 2023
Public Engagement in Health Policy | A Future of Canada Project
The Public Engagement in Health Policy project aims to strengthen health policymaking in Canada by providing a platform for interdisciplinary scholarship, education and leadership in public engagement. Through the research, education and leadership opportunities provided, we seek to address current challenges such as how health policymakers can respond to calls for more inclusive and transformative public engagement processes and how public engagement can be used to improve policy responsiveness, enhance democratic legitimacy, and build trust between governments and citizens.
Information Box Group
Related Resources
WEBSITE
Engaging the public in pandemic policy response: Missed and future opportunities for Canada
Public Engagement in Health Policy, blog post, August 15, 2022
Additional Resources: Principles and Practice
Compensating Patient Partners in Research: Review of Current Guidance and Policies Across Canada
Public and Patient Engagement Collaborative, September 2023
WEBSITE
Partnering principles and strategies: A guidance document for researchers, older adults and caregivers
McMaster Collaborative for Health and Aging, updated March 2023
WEBSITE
Ethical challenges related to patient involvement in Health Technology Assessment
International Journal of Health Technology Assessment in Health Care, June 2019
POP-UP
Are we there yet? Reflections on patient engagement within the Canadian Health System
Webinar hosted by the BC SPOR SUPPORT Unit, March 2019
WEBSITE
Patient engagement in health technology assessment: what constitutes ‘meaningful’ and how might we get there
Journal of Health Services Research and Policy, 2018