Publications, REPORTS AND OTHER RESOURCES

EMPIRICAL STUDIES

PLACEHOLDER TITLE

Tripp L, Abelson J. (2019). Supporting women at average risk to make informed decisions about mammography when there is no 'right' answer: a qualitative citizen deliberation study. CMAJ Open, 7(4): E730. 

Bentley C, Peacock S, Abelson J, Burges MM, Demers-Payette O, Longstaff H, Tripp L, Lavis JN, & Wilson MG. (2019). Addressing the affordability of cancer drugs: using deliberative public engagement to inform health policy. Health Research Policy and Systems, 17(1).

Johnston S, Abelson J, Wong ST, Langton J, Hogel M, Burge F, & Hogg W. (2019). Citizen perspectives on the use of publicly reported primary care performance information: Results from citizen-patient dialogues in three Canadian provinces. Health Expectations.

Bullock HL, & Abelson J. (2019). A fresh approach to reform? A policy analysis of the development and implementation of Ontario's mental health and addictions strategy. Healthcare Policy, 14(3): 29 - 42.

Goold SD, Danis M, Abelson J, Gornick M, Szymecko L, Myers CD, Rowe Z, Kim HM, & Salman C. (2019). Evaluating community deliberations about health research priorities. Health Expectations, 22(4): 772 - 784.

Abelson J, Tripp L, Sussman J. (2018). 'I just want to be able to make a choice': Results from citizen deliberations about mammography screening in Ontario, Canada. Health Policy, 122(12): 1364-1371

Abelson J, Tripp L, Brouwers MC, Pond G, Sussman J. (2018). Uncertain times: A survey of Canadian women's perspectives toward mammography screeningPreventive Medicine, 112: 209-215.

Carroll SL, Embuldeniya G, Abelson J, McGillion M, Berkesse A, & Healey JS.(2017). Questioning patient engagement: research scientists' perceptions of the challenges of patient engagement in a cardiovascular research network. Patient Preference and Adherence, 11:1573.

Abelson J, Allin S, Grignon M, Pasic D, Walli-Attaei M. (2017). Uncomfortable trade-offs: Canadian policy makers' perspectives on setting objectives for their health systemsHealth Policy, 121(1): 9-16.

Montesanti SR, Abelson J, Lavis JN, & Dunn, JR. (2016). Enabling the participation of marginalized populations: case studies from a health service organization in Ontario, Canada. Health Promotion International, 32(4): 636-649.

Abelson J et al. Public Engagement for Health Technology Assessment at Health Quality Ontario. Final report from the Ontario Health Technology Advisory Committee Public Engagement Subcommittee, Health Quality Ontario, April 2015.

Mitton C, Smith N, Peacock B, Evoy B, & Abelson J. Integrating public input into healthcare priority-setting decisions. Evidence & Policy: A Journal of Research, Debate and Practice, 7(3):327-343

Daudelin G, Lehoux P, Abelson J, & Denis JL. (2011). The integration of citizens into a science/policy network in genetics: governance arrangements and asymmetry in expertise. Health Expectations, 14(3):261-271.

Bombard Y, Abelson J, Simeonov D, & Gauvin FP. (2011). Eliciting ethical and social values in health technology assessment: A participatory approach. Social Science & Medicine, 73(1): 135-144.

FRAMEWORKS, CONCEPTS AND TOOLS

PLACEHOLDER TITLE

Abelson, J., Tripp, L., Kandasamy, S., Burrows, K., on behalf of the PPEET Implementation Study Team. (2019). Supporting the evaluation of public and patient engagement in health system organizations: Results from an implementation research study. Health Expectations, 22(5): 1132-1143. DOI: 10.1111/hex.12949

Abelson, J., Humphrey, A., Syrowatka, A., Bidonde, J., Judd, M. (2018). Evaluating patient, family and public engagement in health services improvement and system designHealthcare Quarterly, 21:61-67

Abelson, J., Wagner, F., DeJean, D., Boesveld, S., Gauvin, F-P., Bean, S., Axler, R., Petersen, S., Baidoobonso, S., Pron, G., Giacomini, M., & Lavis, J. (2016). Public and patient involvement in health technology assessment: a framework for actionInternational Journal of Technology Assessment in Health Care, 32(4): 256-264.

Abelson, J., Li, K., Wilson, G., Shields, K., Schneider, C., & Boesveld, S. (2016). Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient and Engagement Evaluation Tool. (2016). Health Expectations, 19(4): 817-827.

Li, K.K., Abelson, J., Giacomini, M., & Contandriopoulos, D. (2015). Conceptualizing the use of public involvement in health policy decision-makingSocial Science & Medicine, 138: 14-21.

Jabbar, A.M. & Abelson, J. (2011). Development of a framework for effective community engagement in Ontario, Canada. Health Policy, 1010(1), 59-69

Abelson, J., & Gauvin, F-P. (2006). Assessing the Impacts of Public Participation: Concepts, Evidence and Policy Implications. Research report of the Public Involvement Network, Canadian Policy Research Networks, March 2006.

Abelson, J., & Gauvin, F-P. (2004). Transparency, Trust, and Citizen Engagement: What Canadians are saying about Accountability. Research report of the Public Involvement Network, Canadian Policy Research Networks, December 2004.

METHODS AND APPROACHES

PLACEHOLDER TITLE

Abelson J. (2015). Patient engagement and Canada’s SPOR initiative. A resource guide for research teams and networks.

Blacksher E, Diebel A, Forest PG, Goold SD, & Abelson J. (2012). What is public deliberation? Hastings Center Report, 42(2): 14-16.

Solomon S, & Abelson J. (2012). Why and when should we use public deliberation? The Hastings Center Report, 42(2):17.

Abelson J, Warren ME, & Forest PG. (2012). The future of public deliberation on health issuesHastings Center Report, 42(2):27-29.

Abelson J, Montesanti S, Li K, Gauvin FP, & Martin E. (2010). Effective Strategies for Interactive Public Engagement in the Development of Healthcare Policies and Programs A research synthesis commissioned by the Canadian Health Services Research Foundation and the New Brunswick Health Research Foundation.

Abelson J & Forest PG (for the Effective Public Consultation Research Team). (2004). Towards More Meaningful, Informed and Effective Public Consultation. Final report to the Canadian Health Services Research Foundation (RC1-0628-06).

Gauvin FP, & Abelson J. (2006) Primer on Public Involvement. Prepared for the Health Council of Canada.

REVIEWS

PLACEHOLDER TITLE

Wilson M, Nidumolu A, Berditchevskaia I, Gauvin FP, Abelson J, & Lavis JN. (2019). Identifying approaches for synthesizing and summarizing information to support informed citizen deliberations in health policy: a scoping reviewJournal of Health Services Research & Policy, [ePub ahead of print]. DOI: 10.1177/1355819619872221

Boivin A, L'Esperance A, Gauvin FP, Dumez V, Macaulay AC, Lehoux P, & Abelson J. (2018). Patient and public engagement in research and health system decision making: A systematic review of evaluation toolsHealth Expectations, 21(6), 1075-1084

Abelson J, Blacksher EA, Li KK, Boesveld SE, & Goold SD. (2013). Public deliberation in health policy and bioethics: mapping an emerging, interdisciplinary fieldJournal of Public Deliberation, 9(1):5.

Gauvin FP, Abelson J, Giacomini M, Eyles J, & Lavis JN. (2011). Moving cautiously: public involvement and the health technology assessment communityInternational Journal of Technology Assessment in Health Care, 27(1):43-49.

EDITORIALS & PERSPECTIVES 

PLACEHOLDER TITLE

Vanstone M, Abelson J, Bidonde J, Bond K, Burgess R, Canfield C, Schwartz L, Tripp L. (2019). Ethical challenges related to patient involvement in Health Technology Assessment. International Journal of Technology Assessment in Health Care, 35(4): 253-256.

Abelson J. (2018). Patient engagement in health technology assessment: what constitutes 'meaningful' and how might we get there. Journal of Health Services Research and Policy, 23(2): 69-71

Boivin A, Richards T, Forsythe L, Gregoire A, L'Esperance A, Abelson J, & Carman KL. (2018). Evaluating patient and public involvement in researchBMJ, 363:k5147